Patient Outreach Committee

The Patient Outreach Committee educates patients and families affected by diseases that may be treatable by gene therapies by developing patient- and public-facing materials to ensure they are both accurate and at an appropriate educational level.
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Kimberly Goodspeed, MD, MSChairUltragenyx Pharmaceutical Inc.6/1/20255/31/202745086
Matthew Fuller, PhDMemberUltragenyx6/1/20255/31/202831031
Raymond Wang, MDMemberCampbell Foundation Director, Lysosomal Disorder Program6/1/20255/31/202845756
Samuel Henry Hughes, MBAMemberSt. Jude Children's Research Hospital6/1/20235/31/202939579
Kim Nye, BAMemberTESS Research Foundation6/1/20255/31/202842845
Colleen H. Dansereau, RN, MSNMemberBoston Children's Hospital6/1/20255/31/202822886
Christal DelagrammatikasMemberMalan Syndrome Foundation6/1/20255/31/202899346
Yulia Grishchuk, PhDMemberMGB, Gene and Cell Therapy Institute6/1/20255/31/202844177
Elaine KernbauerMemberSelf6/1/20265/31/202996656
Leonard A. Valentino, MDMemberRush University Medical Center6/1/20255/31/202838094
Kimberly Goodspeed, MD, MSMemberUltragenyx Pharmaceutical Inc.6/1/20245/31/202745086
Kara Witcoff, MSMemberAskBio6/1/20265/31/202985107
Jenna Petersen, MS, CGCMemberGenome Medical6/1/20245/31/202773045
Melissa Penn, JD, MPHMemberBayer Healthcare Pharmaceuticals6/1/20245/31/202761943
Rachel M. Bailey, Ph.D.MemberUT Southwestern Medical Center6/1/20255/31/202822895
Nicolas J. Abreu, MDMemberNYU School of Medicine6/1/20245/31/202737907
Catherine Argyriou, BS, MS, PhDMemberChildren's Hospital Los Angeles / University of Southern California6/1/20265/31/202929258
YunZu Michele Wang, MDMemberCity of Hope - Duarte, CA6/1/20265/31/202999018
Dominique Pichard, M.D.MemberInternational Rett Syndrome Foundation6/1/20265/31/202990878
Vivian FernandezMemberREGENXBIO Inc.6/1/20245/31/202742181